The NCL Foundation is committed to finding treatment options for the currently incurable, fatal childhood dementia NCL

Childhood dementia NCL (neuronal ceroid lipofuscinosis) comprises a group of genetic metabolic diseases that usually occur in the first decade of life. Initially the children go blind, later they develop epilepsy and the death of nerve cells leads to an unstoppable decline in mental and motor skills. NCL is currently incurable and leads to early death, usually before the age of 30.
The non-profit NCL Foundation supports selected research projects as part of an international network, raises awareness among doctors and the general public and advises affected families and other non-profit NCL institutions. The aim is to develop treatment options for NCL in order to realize a future without childhood dementia.